Monday, September 13, 2010

Patient Self-Advocacy - WHAT is it; HOW to do it?

I HIGHLY RECOMMEND self-advocacy for EVERYONE, but especially for people with disabilities!! Stanford Univ. in the US came up with a program entitled: Chronic Disease Self-Management - see this link: for more information.

Canada, Australia, and the UK have a very similar program called "Expert Patient"; see this link: or this site:

Here is the BEST website that I've found that explains the concept in general and has TONS of info; from New Zealand:

Finally, I've personally written about this concept in my own blogs on my website: - the archived blog way back in 2005 or so. Here's a link to that archived Blog; scroll down about 1/3 of the way to the AUGUST 16, 2005 entry:

I've taken the Stanford course and am a Certified Chronic Disease Self-Manager Trainer. With this knowledge, I've created a FREE ebooklet about how best to become a Self-Advocate. For a copy, please email me:

Finally, I find that most people have problems getting their doctors to actually LISTEN to them - let alone partner with them. It's more prevalent in the US and is called "Doctor (or illness)-Centered" medicine, versus PATIENT-CENTERED medicine. Canada, the UK, Australia and New Zealand are MILES ahead of the US when it comes to patient-centered medicine.

Here's a current study: